International PBC Summit

Please note: this page is a work in progress and we are adding more information regularly.

What is the International PBC Summit?

The Summit is an international annual event, recognised for its unique approach, that brings together all stakeholders in the PBC community to identify unmet needs and enable meaningful solutions.  It has a deliberately bold and unconventional approach that gives more power to those on the floor than those on the stage.  It is a uniquely collaborative and interactive event.

What makes the International
PBC Summit different?

The Summit is where every attendee comes as an equal: no surnames, positions, honorifics, or even companies. We come together as experts trying to bring our collective knowledge to the room to improve the lives of those affected by PBC. At the Summit, the power doesn’t sit at the podium, but on the floor itself, as the room decides where to go next and which topics to work on throughout the year. Anybody can present their thoughts or ideas at the podium, or even in the group discussions, where we can discuss the merit together of each idea raised. There is an itinerary, but the agenda is set by Summit attendees throughout the course of the proceedings.

Summit Structure

The Summit can be split into four days:

Morning One: individual stakeholder groups congregate to discuss what is important to them for this Summit.

Afternoon One: the Summit hears a number of conversation-starters: a quickfire round of presentations sharing notions, ideas, wisdoms – then the room decides on the agenda for the rest of the Summit

Day Two: the delegates split into work groups then work through to the afternoon presenting their 5-point action plan to further the cause in the following year

Day Three: The Lions’ Den: this is where the assembled patient advocacy groups (PAGs) hear directly from, and ask questions of, individual industry companies, one at a time, This day levels the playing field for everybody: PAGs large and small have the same opportunity to hear, challenge and work with industry large and small.

Day Four: this is PAG day where we, as patient groups, come together to share collaborative ideas, and plan on how and where PAGs can lead or be involved in the work derivative of the Summit.