We are excited to announce that, in collaboration with Gilead, a new survey is now available in the PBC Foundation app and on the PBC Foundation website: Itch in PBC.

This survey is being carried to better understand the experiences of people living with Primary Biliary Cholangitis (PBC), especially those who experience itching (pruritus). We want to learn how this symptom affects your day‑to‑day life and overall wellbeing but even if you don’t have itch please take part!

Accessing the Survey
The survey can be accessed via the PBC Foundation app (links included below to download the app) or via the PBC Foundation website.  Please note that you must be logged in to your account to access the survey via the website.

To access the survey via the website, once logged in, go to your account page by clicking on your name to the top right of the page:

Then select ‘Available Surveys’ from the menu on the left:

To access the survey via the app, select ‘Surveys’ from the main Home page:

Download the app:
Apple device: https://apps.apple.com/gb/app/pbc-foundation-self-management/id1225705494
Android device: https://play.google.com/store/apps/details?id=uk.org.pbcfoundation.pbcapp1


Register for free with the PBC Foundation
Registration can be completed by following this link.


If you need support
Please contact us if you have any problems registering with the Foundation, accessing the website, or downloading or accessing the app either by email at info@pbcfoundation.international  or by phone on +44 (0)131 556 6811.