Clinical Trials

We provide support and information for people living with PBC at every stage of their journey. Explore our services and how we can support you.

  • Clinical trials are the best way to evaluate new therapies.
  • Studies are highly regulated and must meet strict approvals.
  • There is no obligation to take part in clinical trials.
  • Your care & treatment will not be affected if you do not participate.
  • You are free to withdraw at any stage.

The Foundation is very proud of its record in supporting and facilitating research about PBC.

There are more clinical trials in PBC than ever before with more pharmaceutical companies exploring possibilities to make a positive difference for PBC patients. Despite great strides in recent years, there are still many unanswered questions about PBC: what causes the disease? how best to treat the condition and its symptoms? and even what is the cure? Research can help answer these questions . People living with PBC may want to consider, if appropriate, taking part in clinical trials. Always ask your doctor for advice about clinical trials and whether you may be suitable to take part.

If you would like to find out more, there are frequently asked questions below that you may find helpful as well as a tool to find current clinical trials in PBC further down the page.

Frequently asked questions about clinical trials

Finding out more information about clinical trials

The PBC Foundation is working with trialport, a clinical trial navigation and decision-support platform. It helps you find, understand, and consider clinical trials for PBC with greater clarity, confidence, and real-world fit.

Disclaimer – Clinical Trial Access

We aim to connect individuals living with PBC to current clinical trials that are actively recruiting participants. While we highlight these opportunities, participation is entirely your choice. We strongly encourage you to discuss any questions around suitability or eligibility with your healthcare provider before deciding to take part in a research study.

trialport FAQs

The following information has been provided directly by trialport in order to help you understand their platform.

About trialport

How trialport works

Cost

Your data and privacy

Trust and reassurance

Other

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