We look forward to welcoming you to our 2025 Patient Conference!
15/5/2025
Date Saturday 13 and Sunday 14 September
Location Delta Hotels by Marriott, 111 Glasgow Road, Edinburgh, EH12 8NF
PLEASE NOTE THAT IN PERSON ATTENDANCE IS NOW FULLY BOOKED
VIRTUAL ATTENDANCE IS STILL AVAILABLE BUT PLEASE BOOK BY WEDNESDAY 10 SEPT
Agenda can be viewed here
In-person and virtual attendance will be available but please note that not all sessions will be available virtually.
In-person spaces and accommodation are allocated on a first-come, first-served basis, and a registration queue will be in place.
Subject to availability, the PBC Foundation will provide accommodation the nights of Friday 12, Saturday 13 and Sunday 14 September (additional nights can be booked at your own expense directly with the hotel).
Please note that we cannot cover travel expenses to and from the conference.
We are building the schedule for this year’s conference and plan to include:
- Clinical updates on care pathways and new therapies.
- Practical advice on reviewing your test results and advocating for yourself at clinic appointments.
- Information on specialist nurse and pharmacist led clinics.
- Nutrition, physiotherapy, self-care, occupational therapy and session for friends and family.
- Information on the services provided by the PBC Foundation and how to access them.
- We also hope to be able to provide fibroscans again this year!
You can view sessions from our 2023 and 2024 conference on PBCTV on YouTube
PBC Foundation Patient Conference 2023
PBC Foundation Patient Conference 2024
The conference is a great opportunity to access support, information and meet others with PBC!
If you’re newly diagnosed or haven’t attended our conference before please consider coming to join us.
How do I register?
Please use this link to register: https://forms.office.com/e/6CDxfe6Mgc
Please make sure you have the following information to hand before starting the form:
- Any hotel requirements
- Dietary or other additional requirements
- Guest information, if applicable (name, contact details, dietary or other requirements)
What happens after I have registered?
We will follow up with you by email within 3 working days of your registration being submitted.*
*Make sure you keep an eye on your Junk folder too, just in case. Emails will be received from the Patient Services Team, Mo, Cheryll or Jo.
What if I have any questions about the conference or registering?
Please email Mo at mo@pbcfoundation.international or you can phone the office on +44 (0)131 556 6811.